ELSI Advisory Group (ELSIag)

The Ethical, Legal and Social Implications advisory group (ELSIag) addresses ethical, legal and social issues that SPHN will face.

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The ELSI Advisory Group is composed of experts from various relevant fields such as bioethics, life sciences law, social sciences.

It also includes representatives of the Swiss Academy of Medical Sciences, swissethics, and patient advocacy groups.

Members

Dr. med. Susanne Driessen

Research ethics
Chairperson of the ELSIag (swissethics)
Matthias Baumgartner

Prof. Matthias Baumgartner

Rare diseases, clinical science
(UZH / KISPI)
David_Haerry_Duplex_cmyk

David Haerry

Patient advocacy
(EUPATI)

Dr. iur. Dominika Blonski

Data protection
(Privatim)

Prof. Thomas Gächter

Public, administrative and social security law
(UZH)

Dr. Manya Hendriks

Bioethics
 
(SAMS)

Dr. Andrea Martani

Biomedical ethics
 
(UZH)

Dr. Caroline Brall

Public health ethics
 
(UniBe)

Dr. Jean-Luc Barras

Head of long-term research
Open data
 
(SNSF)

Ex officio members

Dr. Julia Maurer

ELSI Team lead
(SAMS)

Dr. Michaela Egli

ELSI Project Manager
(SAMS)

Former members

  • Dr. med. Benno Röthlisberger (Genetica)
  • Prof. Beat Rudin, Data protections (Privatim)
  • Prof. Samia Hurst, Bioethics (UniGE)
  • Prof. Effy Vayena, Bioethics and health policy, former president of the ELSIag (ETHZ)
  • Dr. Caroline Brall, Public health ethics, research ethics, ethics education (ex officio)
  • Prof. Jacques Fellay, Genomics, Clinical Science (CHUV / EPFL)
  • Cyrill Berger, Data protection law (Office of the Federal Data Protection and Information Commissioner)
  • Dorothée Caminiti, Health law, bioethics, policy (ex officio)
  • Prof. Annegret Hannawa, Patient safety, communication science (Università della Svizzera italiana)
  • Ursula Koch, Patient advocacy (Krebsliga)
  • Thomas H. Meier, Data protection law (Office of the Federal Data Protection and Information Commissioner)
  • Prof. Francesco Panese, Studies of the relations between science, medicine and society (University of Lausanne)
  • Prof. Brigitte Tag, Health law, human subject research act (University of Zurich)
  • Prof. Jacques de Werra, Internet, information and IP laws (University of Geneva)
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