ELSI Advisory Group (ELSIag)
The Ethical, Legal and Social Implications advisory group (ELSIag) addresses ethical, legal and social issues that SPHN will face.
The ELSI Advisory Group is composed of experts from various relevant fields such as bioethics, life sciences law, social sciences.
It also includes representatives of the Swiss Academy of Medical Sciences (SAMS), swissethics, and patient advocacy groups.
Members
Dr. med. Susanne Driessen
Research ethics
Chairperson of the ELSIag (swissethics)
Prof. Matthias Baumgartner
Rare diseases, clinical science
(UZH / KISPI)
Prof. Samia Hurst
Bioethics
(UNIGE)
David Haerry
Patient advocacy
(EUPATI)
Prof. Beat Rudin
Data protection
(Privatim)
Dr. med. Benno Röthlisberger
Medical genetics
(Genetica, National Ethics Committee)
Prof. Thomas Gächter
Public, administrative and social security law
(UZH)
Manya Hendriks
Bioethics
(SAMS)
Ex officio members
Dr. Thomas Geiger
Managing Director SPHN
(SAMS)
Michaela Egli
ELSI Project Manager
(SAMS)
Former members
- Prof. Effy Vayena, Bioethics and health policy, ELSIag chairperson (ETHZ)
- Dr. Caroline Brall, Public health ethics, research ethics, ethics education (ex officio)
- Prof. Jacques Fellay, Genomics, Clinical Science (CHUV / EPFL)
- Cyrill Berger, Data protection law (Office of the Federal Data Protection and Information Commissioner)
- Dorothée Caminiti, Health law, bioethics, policy (ex officio)
- Prof. Annegret Hannawa, Patient safety, communication science (Università della Svizzera italiana)
- Ursula Koch, Patient advocacy (Krebsliga)
- Thomas H. Meier, Data protection law (Office of the Federal Data Protection and Information Commissioner)
- Prof. Francesco Panese, Studies of the relations between science, medicine and society (University of Lausanne)
- Prof. Brigitte Tag, Health law, human subject research act (University of Zurich)
- Prof. Jacques de Werra, Internet, information and IP laws (University of Geneva)