Publications
Publications resulting from SPHN funded projects can be found on the dedicated project pages.
Peer-reviewed publications on SPHN activities
2023
- Landers C, Ormond KE, Blasimme A, et al. Talking Ethics Early in Health Data Public Private Partnerships. J Bus Ethics (2023). https://doi.org/10.1007/s10551-023-05425-w
- Martani A, Geneviève LD, Wangmo T, et al. Sensing the (digital) pulse. Future steps for improving the secondary use of data for research in Switzerland. DIGITAL HEALTH. 2023;9. doi:10.1177/20552076231169826
- Touré V, Krauss P, Gnodtke K, Buchhorn J, Unni D, Horki P, Raisaro JL, Kalt K, Teixeira D, Crameri K, Österle S. FAIRification of health-related data using semantic web technologies in the Swiss Personalized Health Network. Sci Data. 2023 Mar 10;10(1):127. doi: 10.1038/s41597-023-02028-y. PMID: 36899064; PMCID: PMC10006404.
2022
- Fasquelle-Lopez J, Louis Raisaro J. An Ontology and Data Converter from RDF to the i2b2 Data Model. Stud Health Technol Inform. 2022 May 25;294:372-376. doi: 10.3233/SHTI220477. PMID: 35612099.
2021
- Gaudet-Blavignac C, Raisaro JL, Touré V, Österle S, Crameri K, Lovis C. A National, Semantic-Driven, Three-Pillar Strategy to Enable Health Data Secondary Usage Interoperability for Research Within the Swiss Personalized Health Network: Methodological Study. JMIR Med Inform. 2021 Jun 24;9(6):e27591. doi: 10.2196/27591. PMID: 34185008; PMCID: PMC8277320.
- Österle, S.; Touré, V.; Crameri, K. The SPHN Ecosystem Towards FAIR Data. CEUR Workshop Proceedings, SWAT4HCLS 2021, 3127-1, 19-28
- Krauss P, Touré V, Gnodtke K, Crameri K, Österle S. DCC Terminology Service—An Automated CI/CD Pipeline for Converting Clinical and Biomedical Terminologies in Graph Format for the Swiss Personalized Health Network. Applied Sciences. 2021; 11(23):11311. https://doi.org/10.3390/app112311311
2020
- Lawrence AK, Selter L, Frey U. SPHN - The Swiss Personalized Health Network Initiative. Stud Health Technol Inform. 2020 Jun 16;270:1156-1160. doi: 10.3233/SHTI200344. PMID: 32570562.
- Coman Schmid D, Crameri K, Oesterle S, Rinn B, Sengstag T, Stockinger H; BioMedIT network team. SPHN - The BioMedIT Network: A Secure IT Platform for Research with Sensitive Human Data. Stud Health Technol Inform. 2020 Jun 16;270:1170-1174. doi: 10.3233/SHTI200348. PMID: 32570566.
- Blasimme A, Brall C, Vayena E. Reporting Genetic Findings to Individual Research Participants: Guidelines From the Swiss Personalized Health Network. Front Genet. 2020 Dec 11;11:585820. doi: 10.3389/fgene.2020.585820. PMID: 33362850; PMCID: PMC7759560.
2018
- Meier-Abt PJ, Lawrence AK, Selter L, Effy V, Torsten S (2018). The Swiss approach to precision medicine. Swiss Med. Wkly 18 28–36. doi.org/10.3929/ethz-b-000274911
Publications in French/German:
- Un écosystème de données au service de la médecine personnalisée. Böhm I. Bulletin des médecins suisse 2023;104(43):18–21 (in French).
- Ein Ökosystem für die personalisierte Medizin. Böhm I. Schweiz Ärzteztg. 2023;104(43):18–21 (in German).
- Daten über Krebserkrankungen besser erfassen und nutzen Rachamin Y, Horki P, Crameri K, Kasenda B, Antonov J, Aghayev E, Grimm M, Schulenburg J, Hugelshofer D, Maurer J, Michielin O, Röthlisberger M, Stieltjes B, Köberle D. Schweiz Ärzteztg. 2023;104(17):35-38
- Die Medizin der Zukunft ist personalisiert Frey U, Geiger T, Selter L. Schweiz Ärzteztg. 2021;102(04):142-143
- Ein ethischer Rahmen für den Austausch von Gesundheitsdaten Vayena E. Schweiz Ärzteztg. 2017;98(36):1138–1140
- Swiss Personalized Health Network (SPHN): Die nationale Initiative im Überblick. Lawrence A, Selter L. Schweiz Ärzteztg. 2017;98(19):595–596
SPHN Factsheets and Reports
- SPHN Factsheet 2023
- SPHN Factsheet 2022
- SPHN Factsheet 2020
- SPHN Short Report 2017
- SPHN Short Report 2018
- SPHN Short Report 2019
- SPHN Short Report 2020
- SPHN Short Report 2021
- SPHN Short Report 2022
- SPHN Report from the National Steering Board 2016-2019
- The SPHN Data Coordination Center (SPHN-DCC): Consolidating the SPHN infrastructures beyond 2024
Communications from the Swiss Academies of Medical Sciences (SAMS) about SPHN
SAMS Bulletin: SPHN activities are featured in the quarterly printed SAMS bulletin, which provides information about current activities of the Academy and SPHN (available in German and French): https://www.samw.ch/en/Publications/SAMS-Bulletin.html
SAMS Newsletter: a complete list of SAMS Newsletter about SPHN activities can be found here: https://www.samw.ch/en/Projects/Overview-of-projects/Personalized-Health/SPHN.html