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Save the Date: 2nd Joint Personalized Health Day

The 2nd Personalized Health Day aims to make the achievements of SPHN and the ETH Strategic Focus Area «Personalized Health and Related Technologies» (PHRT) more visible, sensitize the community about the requirements for developing a sustainable data-driven health data ecosystem enabling personalized health research, foster interdisciplinary collaboration across domains/communities, and discuss the remaining gaps and …

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Save the Date: Call for Demonstrator projects

25 March 2022 Demonstrator projects aim to demonstrate the added value of the SPHN data resources and infrastructure elements for data-driven personalized health research, clinical and public health research, and clinical use. Demonstrator projects shall use the SPHN infrastructures, processes and frameworks to demonstrate the utility and fit-for-purpose of those SPHN ecosystem elements and identify …

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SPHN as ICPerMed Best Practice example in Personalised Medicine

21 February 2022 Successful approaches for personalised medicine are becoming a reality. To show this, the International Consortium for Personalized Medicine (ICPerMed) features best practice examples. These are suggested by ICPerMed members and approved by ICPerMed. SPHN is since 2017 full member of ICPerMed and was recently featured as Best Practice example. The best practice …

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ICPerMed “Best Practice in Personalised Medicine” Recognition 2021 – open for applications

10 January 2022 Since 2017 SPHN is full member of the International Consortium for Personalized Medicine (ICPerMed). Recently, ICPerMed launched its fourth Recognition to honour, encourage, promote and disseminate outstanding evidence-based applications in the field of personalised medicine (PM), focusing on the implementation of PM research. The deadline for proposal submission is extended until 18 …

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SPHN issues guidelines for ethical health data sharing in public private partnerships

15 December 2021 SPHN is building a dynamic, scalable network of data providers to leverage the potential of health-related data for the benefit of society. Data generated through SPHN funds are considered to be a common good that should be made broadly accessible to all eligible parties. SPHN therefore encourages its grantees to share data …

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Renewal of the Collaboration Agreements until 2024

25 November 2021 At the beginning of 2018, SPHN and the five university hospitals signed collaboration agreements for building interoperable clinical data management systems. Thereby, the foundation was laid for the close cooperation between SPHN and the hospitals to support nationwide research with health-related data within the framework of the initiative. The review of SPHN’s …

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BioMedIT Report 2017-2020

10 August 2021 In 2017, the Swiss Confederation decided to fund the BioMedIT network project, as integral part of SPHN. As a project of SIB Swiss Institute of Bioinformatics, the secure and cutting-edge IT environment BioMedIT is established nationally to support computational, biomedical research and clinical bioinformatics, ensuring data privacy. The results from the first BioMedIT phase (2017-2020) are …

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Goodbye and Thank you, Adrien Lawrence

The Swiss Personalized Health Network (SPHN) was launched in 2016 with the aim of facilitating the use and exchange of health data for research. In his role as inaugural Managing Director of SPHN, Adrien Lawrence competently and efficiently set up the Management Office, shaping the initiative’s governance structures and operational framework. He served as an …

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Strengthening the health data-driven ecosystem in Switzerland: academia and pharma industry agree on common foundations to jointly improve technical and semantical data interoperability in Switzerland

When clinical data from different sources are combined for research projects, interoperability is key: the meaning of data has to be interpretable for humans and machines, and the exchange format has to be able to carry the meaning of data. Together with industry partners, the Swiss Personalized Health Network (SPHN), Interpharma and the Handelskammer beider …

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Reporting actionable genetic findings to research participants

The ELSI Advisory Group has developed guidance for ‘Reporting Actionable Genetic Findings to Research Participants’. The document contains recommendations that suggest mechanisms to support an ethically responsible handling of research findings that have potential medical relevance for individual research participants involved in SPHN-funded studies. They suggest harmonized procedures to enhance the public accountability of decisions …

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