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Where are the bottlenecks to health data sharing in Switzerland?

14 March 2024 The Swiss Personalized Health Network (SPHN) initiative coordinates the development of infrastructures for the responsible use of health-related data in research throughout Switzerland. The sharing of health data however faces repeatedly hurdles and bottlenecks. A recently published study sheds light on legal and ethical challenges besides technical aspects.  Switzerland has numerous laws, …

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IAB report 2023

14 December 2023 The SPHN International Advisory Board (IAB) has been involved in the evolution of the initiative since the very beginning. With the exception of the time during the Covid pandemic, the IAB has reviewed the progress of the activities of SPHN on an annual basis, providing valuable input and recommendations. The 2023 IAB report …

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Susanne Driessen as new ELSIag Chair, farewell and thank you to Effy Vayena

2 October 2023 (updated on 4 December) Effy Vayena has been a dedicated contributor to the SPHN initiative from its inception. As chair of the ELSI Advisory Group (ELSIag) E. Vayena has made important contributions to laying the ground work of today’s network. With the Ethical Framework for Responsible Data processing, the ELSIag established one …

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Save the Date: 2nd Joint Personalized Health Day

The 2nd Personalized Health Day aims to make the achievements of SPHN and the ETH Strategic Focus Area «Personalized Health and Related Technologies» (PHRT) more visible, sensitize the community about the requirements for developing a sustainable data-driven health data ecosystem enabling personalized health research, foster interdisciplinary collaboration across domains/communities, and discuss the remaining gaps and …

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Save the Date: Call for Demonstrator projects

25 March 2022 Demonstrator projects aim to demonstrate the added value of the SPHN data resources and infrastructure elements for data-driven personalized health research, clinical and public health research, and clinical use. Demonstrator projects shall use the SPHN infrastructures, processes and frameworks to demonstrate the utility and fit-for-purpose of those SPHN ecosystem elements and identify …

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SPHN as ICPerMed Best Practice example in Personalised Medicine

21 February 2022 Successful approaches for personalised medicine are becoming a reality. To show this, the International Consortium for Personalized Medicine (ICPerMed) features best practice examples. These are suggested by ICPerMed members and approved by ICPerMed. SPHN is since 2017 full member of ICPerMed and was recently featured as Best Practice example. The best practice …

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