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New publication: “Exploring data governance for data sharing at Swiss university hospitals” Local data governance bodies within health data providing institutions play a central role in shaping the secondary use of routine health data. To transparently share knowledge with all stakeholders, SPHN publishes a detailed comparison of institutional data governance practices across the five Swiss …

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A unified contractual framework for health data sharing A newly published introductory reference paper provides practical information for the set-up of a contractual framework for multi-center data-driven health research. The reference paper explains the basics of the Legal Agreement Templates published by SPHN and offers in-depth insights on complex issues such as governance, data reuse, and …

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“If there is a shared will, almost any problem can be solved” With its new 2025–2028 mandate, SPHN has successfully entered the next phase of its work. In this interview, Managing Director Thomas Geiger (SAMS) and Technical Director Davide Chiarugi (SIB) explain how they plan to expand services for researchers and why SPHN is considered …

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The conference, co-organized by SPHN and PHRT, showed how personalized medicine can improve patient care. Over two days, researchers presented their work and discussed with patients and policymakers how the future of personalized health might take shape. 04.09.2025 On August 28-29, more than 300 participants gathered for the conference From Technology to Treatment at ETH …

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New Schema Release: A major step toward FAIR medical imaging data  The latest release of the SPHN data model introduces a long-awaited, standardized framework for medical imaging data in Switzerland. The model extension supports researchers in analyzing and sharing medical imaging data, promoting the next step in advancing personalized medicine in Switzerland. 21.08.2025 With medical …

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Spotlight on the SPHN Metadata Catalog: Making Swiss health datasets more visible and reusable The SPHN Metadata Catalog addresses a key challenge in health data research: how to make datasets discoverable without exposing sensitive content. By offering detailed metadata on existing datasets and their structure, it enables researchers to identify relevant sources for their projects …

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SPHN introduces new governance structure and funding scheme To cater to its new mandate, the Swiss Personalized Health Network adapts its governance structure and funding regulations. A new Sounding Board ensures all relevant stakeholders are on board.  08.07.2025 With the formal signing of the mandate 2025–2028 by the Confederation, the governance structure of the Swiss …

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SPHN RDF Schema applied in international context Two research teams from France have successfully applied  SPHN’s data schema in their research project. Their work highlights that, for certain use cases, knowledge graphs can be more effective than traditional tabular data formats. 29.04.2025 The SPHN RDF Schema, a core component of the SPHN Semantic Interoperability Framework, …

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De-Identification – how to protect patient privacy effectively Protecting patient privacy requires careful measures to de-identify health data. To address this, SPHN has developed a legally compliant de-identification methodology and a practical template to facilitate its implementation. These resources fill a crucial gap in Swiss data de-identification guidance. 27 February 2025 The methodology to de-identify …

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New registry regulation template to set up purpose, structure and workflow This new template offers a comprehensive framework for establishing a health data registry. It covers key aspects such as purpose, governance, data access protocols, and quality management systems, ensuring alignment with ethical and legal principles. 3 February 2025 Together with several other partners, SPHN …

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