10 January 2022 Since 2017 SPHN is full member of the International Consortium for Personalized Medicine (ICPerMed). Recently, ICPerMed launched its fourth Recognition to honour, encourage, promote and disseminate outstanding evidence-based applications in the field of personalised medicine (PM), focusing on the implementation of PM research. The deadline for proposal submission is extended until 18 …
15 December 2021 SPHN is building a dynamic, scalable network of data providers to leverage the potential of health-related data for the benefit of society. Data generated through SPHN funds are considered to be a common good that should be made broadly accessible to all eligible parties. SPHN therefore encourages its grantees to share data …
SPHN issues guidelines for ethical health data sharing in public private partnerships Read More »
25 November 2021 At the beginning of 2018, SPHN and the five university hospitals signed collaboration agreements for building interoperable clinical data management systems. Thereby, the foundation was laid for the close cooperation between SPHN and the hospitals to support nationwide research with health-related data within the framework of the initiative. The review of SPHN’s …
Renewal of the Collaboration Agreements until 2024 Read More »
10 August 2021 In 2017, the Swiss Confederation decided to fund the BioMedIT network project, as integral part of SPHN. As a project of SIB Swiss Institute of Bioinformatics, the secure and cutting-edge IT environment BioMedIT is established nationally to support computational, biomedical research and clinical bioinformatics, ensuring data privacy. The results from the first BioMedIT phase (2017-2020) are …
The Swiss Personalized Health Network (SPHN) was launched in 2016 with the aim of facilitating the use and exchange of health data for research. In his role as inaugural Managing Director of SPHN, Adrien Lawrence competently and efficiently set up the Management Office, shaping the initiative’s governance structures and operational framework. He served as an …
When clinical data from different sources are combined for research projects, interoperability is key: the meaning of data has to be interpretable for humans and machines, and the exchange format has to be able to carry the meaning of data. Together with industry partners, the Swiss Personalized Health Network (SPHN), Interpharma and the Handelskammer beider …
The ELSI Advisory Group has developed guidance for ‘Reporting Actionable Genetic Findings to Research Participants’. The document contains recommendations that suggest mechanisms to support an ethically responsible handling of research findings that have potential medical relevance for individual research participants involved in SPHN-funded studies. They suggest harmonized procedures to enhance the public accountability of decisions …
Reporting actionable genetic findings to research participants Read More »
Article by Dr. Katrin Crameri in MIRACUM Journal #3, March 2020 (translation of the original German text) In tomorrow’s digital, learning healthcare system, healthcare and research must go hand in hand. In order to meet this aspiration, current national projects are also striving for international harmonization and interoperability. The efforts are enormous, but there is no …
Following an overall review of the initiative in 2019, the National Steering Board (NSB) of SPHN decided to create a National Advisory Board (NAB) in order to strengthen the infrastructural aspects of the initiative. In February 2020, the NSB elected the following experts as part of the NAB: Prof. Torsten Schwede, Chairperson Prof. Alexander Leichtle …