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When clinical data from different sources are combined for research projects, interoperability is key: the meaning of data has to be interpretable for humans and machines, and the exchange format has to be able to carry the meaning of data. Together with industry partners, the Swiss Personalized Health Network (SPHN), Interpharma and the Handelskammer beider …

Strengthening the health data-driven ecosystem in Switzerland: academia and pharma industry agree on common foundations to jointly improve technical and semantical data interoperability in Switzerland Read More »

The ELSI Advisory Group has developed guidance for ‘Reporting Actionable Genetic Findings to Research Participants’. The document contains recommendations that suggest mechanisms to support an ethically responsible handling of research findings that have potential medical relevance for individual research participants involved in SPHN-funded studies. They suggest harmonized procedures to enhance the public accountability of decisions …

Reporting actionable genetic findings to research participants Read More »

Article by Dr. Katrin Crameri in MIRACUM Journal #3, March 2020 (translation of the original German text) In tomorrow’s digital, learning healthcare system, healthcare and research must go hand in hand. In order to meet this aspiration, current national projects are also striving for international harmonization and interoperability. The efforts are enormous, but there is no …

No more time for quick wins Read More »