michael.mueller@sib.swiss

SPHN Mocker released

SPHN Mocker released 15 July 2024 The DCC announces the release of the SPHN Mocker, a Python library designed to facilitate the generation of SPHN-compatible mock data. With the increasing need for RDF data to test various tools and services within the SPHN Semantic Interoperability Framework, the SPHN Mocker allows users to effortlessly generate realistic …

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Transnational health care research – carefully connecting the dots towards a European Health Data Space

In 2023, SPHN met with representatives of the German and Dutch national health research data initiatives (Medizininformatik-Initiative (MII) and Health-RI respectively) in Berlin to compare experiences and best practice through discussions around legal frameworks, informed patient consent, semantic interoperability, data exchange processes, and failures and remaining challenges, amongst other topics. The three initiatives have taken …

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Looking back, looking ahead: Interview with Katrin Crameri and Thomas Geiger

27 June 2024 Many people contribute to the success of a national initiative like SPHN. In the two core teams in the SPHN Management Office at the SAMS and in the Data Coordination Centre (DCC) at the SIB Swiss Institute of Bioinformatics, two persons shaped developments significantly in recent years:  Thomas Geiger, managing director of …

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Where are the bottlenecks to health data sharing in Switzerland?

14 March 2024 The Swiss Personalized Health Network (SPHN) initiative coordinates the development of infrastructures for the responsible use of health-related data in research throughout Switzerland. The sharing of health data however faces repeatedly hurdles and bottlenecks. A recently published study sheds light on legal and ethical challenges besides technical aspects.  Switzerland has numerous laws, …

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FOPH research concept “Health 2025-2028”

09.01.2024 The research concept Health defines the Confederation’s research activities and priodities in the filed of health for the years 2025-28. The use of routine healthcare data for data-driven medical research is becoming increasingly important. This data is particularly crucial for discovering new correlations between the biological characteristics of patients and their health or disease …

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IAB report 2023

14 December 2023 The SPHN International Advisory Board (IAB) has been involved in the evolution of the initiative since the very beginning. With the exception of the time during the Covid pandemic, the IAB has reviewed the progress of the activities of SPHN on an annual basis, providing valuable input and recommendations. The 2023 IAB report …

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