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New Publication: Report from the National Steering Board 2016 – 2019

The report of the National Steering Board, published in the Swiss Academies Reports series, presents the many infrastructures, technologies and methods that SPHN and its partners have developed since the launch of the initiative to enable research with large amounts of sensitive data in a responsible, ethical, secure and legally compliant manner. One of the …

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SPHN in the BMS – the Future of Medicine is Personalized

SPHN is featured in edition 102(4) of the Bulletin des médecins suisses; “Over the last twenty years, personalized medicine has established itself as a trend of patient-oriented research and will most likely continue to play an increasing role in shaping our healthcare in the future. Thanks to excellent research, innovation and its high-quality healthcare system, …

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SPHN funding period 2021-2024

The Confederation renews the mandate of the Swiss Academies of Medical Sciences (SAMS) and the SIB Swiss Institute of Bioinformatics for a second SPHN funding period for 2021 to 2024. A total budget of 66.9 Mio CHF is foreseen. After the successful establishment of many new infrastructures, technologies and methods enabling researchers and clinicians to …

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Legal agreement templates for collaborative research projects

The contractual architecture for a collaborative use of health-related data depends on the project specifications and responsibilities of the parties involved. The new, modular set of legal agreement templates – elaborated by SIB for SPHN, in collaboration with Swiss data providers and data recipients – build on the SPHN DTUA (version 1.0) developed in 2019, …

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Strengthening the health data-driven ecosystem in Switzerland: academia and pharma industry agree on common foundations to jointly improve technical and semantical data interoperability in Switzerland

When clinical data from different sources are combined for research projects, interoperability is key: the meaning of data has to be interpretable for humans and machines, and the exchange format has to be able to carry the meaning of data. Together with industry partners, the Swiss Personalized Health Network (SPHN), Interpharma and the Handelskammer beider …

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Reporting actionable genetic findings to research participants

The ELSI Advisory Group has developed guidance for ‘Reporting Actionable Genetic Findings to Research Participants’. The document contains recommendations that suggest mechanisms to support an ethically responsible handling of research findings that have potential medical relevance for individual research participants involved in SPHN-funded studies. They suggest harmonized procedures to enhance the public accountability of decisions …

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No more time for quick wins

Article by Dr. Katrin Crameri in MIRACUM Journal #3, March 2020 (translation of the original German text) In tomorrow’s digital, learning healthcare system, healthcare and research must go hand in hand. In order to meet this aspiration, current national projects are also striving for international harmonization and interoperability. The efforts are enormous, but there is no …

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