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Reporting actionable genetic findings to research participants

The ELSI Advisory Group has developed guidance for ‘Reporting Actionable Genetic Findings to Research Participants’. The document contains recommendations that suggest mechanisms to support an ethically responsible handling of research findings that have potential medical relevance for individual research participants involved in SPHN-funded studies. They suggest harmonized procedures to enhance the public accountability of decisions …

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No more time for quick wins

Article by Dr. Katrin Crameri in MIRACUM Journal #3, March 2020 (translation of the original German text) In tomorrow’s digital, learning healthcare system, healthcare and research must go hand in hand. In order to meet this aspiration, current national projects are also striving for international harmonization and interoperability. The efforts are enormous, but there is no …

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SPHN in a nutshell

Between September and December 2019, SPHN reported and illustrated the activities of the last two years. In the SPHN fact-sheet, an overview of the initiative (mandate, governance, stakeholders), of the projects supported by SPHN, as well as of the BioMedIT project is presented. In the Review report (2019), the International Advisory Board (IAB) made an …

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Welcome to the new sphn.ch website

To best serve the SPHN community, you can now find all relevant information from both, the SPHN initiative and the SIB Personalized Health Informatics Group (PHI).

Interview with Katrin Crameri and Torsten Schwede, passing the baton

On 1 March 2019, Katrin Crameri took over the leadership of the Personalized Health Informatics (PHI) Group responsible for the Data Coordination Center of SPHN. In an interview, they share their vision of the PHI group’s mandate and their common longstanding passion to make data-driven medicine a reality in Switzerland. Read the Interview…

Welcome to Katrin Crameri and Kristin Gnodtke

We are pleased to announce two new team members who will fill key roles, bringing additional knowhow and experience to our team.
Katrin Crameri has joined as the new Director Personalized Health Informatics group, and Kristin Gnodtke as Clinical Data Specialist.

Swiss Personalized Health Network (SPHN) named a 2019 GA4GH Driver Project

The Swiss Personalized Health Network (SPHN) will join an international group of 22 leading genomic data initiatives working together to enable sharing of genomic and health-related data for research. The Global Alliance for Genomics and Health (GA4GH) has selected SPHN among its 2019 Driver Projects that aim to develop and pilot standards for sharing genomic and health-related data.

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