To strengthen the infrastructural aspects of the initiative, a “Call for Candidatures” is launched to elect a chairperson and 3 – 4 members of the National Advisory Board (NAB).
Dealing with confidential human data requires awareness of data privacy, respective laws and the latest information security requirements.
The new SPHN fact-sheet 2019 aligns all stakeholders on the vision, the mandate, the national governance, and the implementation of SPHN. This large-scale, national initiative rallies all decision-makers from key clinical, research, and research support institutions as well as patient organizations around the same table.
To ensure nationwide interoperability of biomedical data, a variety of technical and semantic challenges need to be addressed, ranging from the agreement on common data standards, to building a federated secure IT infrastructure.
The key objective of the SPHN is to enable cutting-edge personalized health research by establishing nationwide interoperability of health data. Today we report progress achieved in BioMedIT, a project aimed at setting up a nationwide network of secure computing infrastructures, enabling clinical and biomedical research. Each BioMedIT node is affiliated to SIB partner Universities, namely sciCORE, Vital-IT, and SIS.
SPHN and Swiss Biobanking Platform (SBP) have worked in close collaboration to deliver Data Transfer and Use Agreement and Material Transfer Agreement templates to facilitate data and material exchange in the context of academic research projects. In order to be able to exchange data and samples for research projects between institutions, a Data Transfer and …
We are pleased to announce two new team members who will fill key roles, bringing additional knowhow and experience to our team.
Katrin Crameri has joined as the new Director Personalized Health Informatics group, and Kristin Gnodtke as Clinical Data Specialist.
The Personalized Health Informatics group (PHI) together with the SPHN Management Office (MO) hosted the representatives of the newly funded projects during the 2nd call on-boarding session. Participants learned about the importance of the research projects advancing the SPHN initiative as well as the BioMedIT project. Additionally, the research project participants were realigned on the funding regulations, as well …
The Swiss Personalized Health Network (SPHN) will join an international group of 22 leading genomic data initiatives working together to enable sharing of genomic and health-related data for research. The Global Alliance for Genomics and Health (GA4GH) has selected SPHN among its 2019 Driver Projects that aim to develop and pilot standards for sharing genomic and health-related data.
In December, Martin Fox has joined our team as a BioMedIT Project Manager. He will be working very closely with the experienced and knowledgeable IT and security specialists involved in BioMedIT, defining and managing implementation milestones within each project workstream, as well as monitoring the progress to ensure that the milestones are achieved.