The contractual architecture for a collaborative use of health-related data depends on the project specifications and responsibilities of the parties involved. The new, modular set of legal agreement templates – elaborated by SIB for SPHN, in collaboration with Swiss data providers and data recipients – build on the SPHN DTUA (version 1.0) developed in 2019, …
Legal agreement templates for collaborative research projects Read More »
Find out about the current status of the initiative, its perspectives and goals for the next funding period, and its impact on society – from citizens and researchers to hospitals and partners. “Since 2017, SPHN has developed over 70 infrastructures, technologies and methods enabling researchers and clinicians to safely use large sets of health data …
SPHN was represented at the 8th Plenary of GA4GH with a poster highlighting the FAIRification of Health Genomics Data in Switzerland. The 8th Plenary was held online on the 29th and 30th of September 2020. Abstract: Enabling the use and exchange of interoperable health data for research is the overall objective of the Swiss …
Health Genomics within SPHN – Poster from 8th GA4GH Plenary Meeting Read More »
The Swiss Personalized Health Network (SPHN) was launched in 2016 with the aim of facilitating the use and exchange of health data for research. In his role as inaugural Managing Director of SPHN, Adrien Lawrence competently and efficiently set up the Management Office, shaping the initiative’s governance structures and operational framework. He served as an …
When clinical data from different sources are combined for research projects, interoperability is key: the meaning of data has to be interpretable for humans and machines, and the exchange format has to be able to carry the meaning of data. Together with industry partners, the Swiss Personalized Health Network (SPHN), Interpharma and the Handelskammer beider …
The ELSI Advisory Group has developed guidance for ‘Reporting Actionable Genetic Findings to Research Participants’. The document contains recommendations that suggest mechanisms to support an ethically responsible handling of research findings that have potential medical relevance for individual research participants involved in SPHN-funded studies. They suggest harmonized procedures to enhance the public accountability of decisions …
Reporting actionable genetic findings to research participants Read More »
Article by Dr. Katrin Crameri in MIRACUM Journal #3, March 2020 (translation of the original German text) In tomorrow’s digital, learning healthcare system, healthcare and research must go hand in hand. In order to meet this aspiration, current national projects are also striving for international harmonization and interoperability. The efforts are enormous, but there is no …
Following an overall review of the initiative in 2019, the National Steering Board (NSB) of SPHN decided to create a National Advisory Board (NAB) in order to strengthen the infrastructural aspects of the initiative. In February 2020, the NSB elected the following experts as part of the NAB: Prof. Torsten Schwede, Chairperson Prof. Alexander Leichtle …
The SPHN Management Office and the Personalized Health Informatics group are working from home until further notice. You can contact our collaborators by email. Full contact details can be found on the Implementation Teams page. Postmail will be checked regularly but not daily. Please send us a copy of any urgent correspondence as a pdf …
Between September and December 2019, SPHN reported and illustrated the activities of the last two years. In the SPHN fact-sheet, an overview of the initiative (mandate, governance, stakeholders), of the projects supported by SPHN, as well as of the BioMedIT project is presented. In the Review report (2019), the International Advisory Board (IAB) made an …