Manuela Paganini

SPHN publishes paper on Schema Forge

SPHN publishes paper on a key tool for semantic health data modeling The scientific paper presents the SPHN Schema Forge, a tool that turns health data definitions into standardised machine-readable formats. Used in numerous SPHN-funded projects, it supports FAIR data and semantic interoperability in the Swiss health research data ecosystem. 09.05.2025 We’re excited to share …

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Regsitration open: From Technology to Treatment conference

From Technology to Treatment conference – register now Join us for this two-day conference hosted by SPHN and PHRT to explore the latest advances in personalized medicine and discover projects that are translating research into real-world clinical applications. 24.04.2025 We are very pleased to announce our upcoming symposium, “From Technology to Treatment – Advancing Precision …

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SPHN introduces medical imaging concepts

Imagine all the data – SPHN introduces medical imaging concepts for its data model Diagnostic imaging methods have become an integral part of medical examinations. The latest extension of SPHN’s data model now enables the structured representation of medical imaging data, making it easier to integrate and share across research projects. 03.04.2025 Over the years, …

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Swiss Personalized Health Network ensures continuity

Swiss Personalized Health Network ensures continuity The development phase of the Swiss Personalized Health Network was successfully completed at the end of 2024. Over the next four years, the network will focus on maintaining and establishing its services and infrastructures. 13.03.2025 Since its launch eight years ago, the Swiss Personalized Health Network (SPHN) has established …

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New group leader of the SIB Personalized Health Informatics Group

New group leader of the SIB Personalized Health Informatics Group Dr. Davide Chiarugi joins SPHN as the new leader of the SIB Personalized Health Informatics Group (PHI), succeeding Katrin Crameri. With a PhD in Computer Science and extensive leadership experience, he brings strong expertise in data management, data-driven research, and coordinating multi-stakeholder projects. 28.02.2025 Dr. …

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De-Identification – how to protect patient privacy effectively

De-Identification – how to protect patient privacy effectively Protecting patient privacy requires careful measures to de-identify health data. To address this, SPHN has developed a legally compliant de-identification methodology and a practical template to facilitate its implementation. These resources fill a crucial gap in Swiss data de-identification guidance. 27 February 2025 The methodology to de-identify …

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Using genomic data in human research – new SPHN Guidance

Trusted framework for genomic data in human research: New SPHN Guidance In addition to offering significant opportunities for research, the secondary use of human genomic data also entails considerable responsibility. The newly published guidance document from the SPHN ELSI advisory group provides valuable practical ethical recommendations, including those on consent, the responsible communication of genetic …

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New registry regulation template

New registry regulation template to set up purpose, structure and workflow This new template offers a comprehensive framework for establishing a health data registry. It covers key aspects such as purpose, governance, data access protocols, and quality management systems, ensuring alignment with ethical and legal principles. 3 February 2025 Together with several other partners, SPHN …

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Why Switzerland needs a Swiss Trusted Research Environment

Research with sensitive data in Switzerland requires a Trusted Research Environment. In our new whitepaper we highlight how BioMedIT balances data access and security, offering insights into collaboration, federation, and trust-building for future-ready research. For groundbreaking health research, researchers need a Trusted Research Environment (TRE). It enables them to work with sensitive personal data while …

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