The focus of this year’s first SAMS Bulletin is dedicated to SPHN. As the first SPHN funding period 2017-2020 has come to an end, the article summarizes work, milestones and challenges of SPHN and outlines plans for the second funding period 2021-2024. Switzerland is well-positioned to create a data-driven, learning health system, but hurdles to …
Thomas Geiger is the new Managing Director of SPHN as of 1 March 2021, after an ad interim period during which the Management Office (MO) was joined with the Department Science of the Swiss Academy of Medical Sciences under the lead of Myriam Tapernoux. In addition, Sarah Vermij strengthens the SPHN team as new scientific …
The report of the National Steering Board, published in the Swiss Academies Reports series, presents the many infrastructures, technologies and methods that SPHN and its partners have developed since the launch of the initiative to enable research with large amounts of sensitive data in a responsible, ethical, secure and legally compliant manner. One of the …
New Publication: Report from the National Steering Board 2016 – 2019 Read More »
SPHN is featured in edition 102(4) of the Bulletin des médecins suisses; “Over the last twenty years, personalized medicine has established itself as a trend of patient-oriented research and will most likely continue to play an increasing role in shaping our healthcare in the future. Thanks to excellent research, innovation and its high-quality healthcare system, …
SPHN in the BMS – the Future of Medicine is Personalized Read More »
The Confederation renews the mandate of the Swiss Academies of Medical Sciences (SAMS) and the SIB Swiss Institute of Bioinformatics for a second SPHN funding period for 2021 to 2024. A total budget of 66.9 Mio CHF is foreseen. After the successful establishment of many new infrastructures, technologies and methods enabling researchers and clinicians to …
The contractual architecture for a collaborative use of health-related data depends on the project specifications and responsibilities of the parties involved. The new, modular set of legal agreement templates – elaborated by SIB for SPHN, in collaboration with Swiss data providers and data recipients – build on the SPHN DTUA (version 1.0) developed in 2019, …
Legal agreement templates for collaborative research projects Read More »
Find out about the current status of the initiative, its perspectives and goals for the next funding period, and its impact on society – from citizens and researchers to hospitals and partners. “Since 2017, SPHN has developed over 70 infrastructures, technologies and methods enabling researchers and clinicians to safely use large sets of health data …
SPHN was represented at the 8th Plenary of GA4GH with a poster highlighting the FAIRification of Health Genomics Data in Switzerland. The 8th Plenary was held online on the 29th and 30th of September 2020. Abstract: Enabling the use and exchange of interoperable health data for research is the overall objective of the Swiss …
Health Genomics within SPHN – Poster from 8th GA4GH Plenary Meeting Read More »
When clinical data from different sources are combined for research projects, interoperability is key: the meaning of data has to be interpretable for humans and machines, and the exchange format has to be able to carry the meaning of data. Together with industry partners, the Swiss Personalized Health Network (SPHN), Interpharma and the Handelskammer beider …
The ELSI Advisory Group has developed guidance for ‘Reporting Actionable Genetic Findings to Research Participants’. The document contains recommendations that suggest mechanisms to support an ethically responsible handling of research findings that have potential medical relevance for individual research participants involved in SPHN-funded studies. They suggest harmonized procedures to enhance the public accountability of decisions …
Reporting actionable genetic findings to research participants Read More »