New registry regulation template to set up purpose, structure and workflow This new template offers a comprehensive framework for establishing a health data registry. It covers key aspects such as purpose, governance, data access protocols, and quality management systems, ensuring alignment with ethical and legal principles. 3 February 2025 Together with several other partners, SPHN …
Research with sensitive data in Switzerland requires a Trusted Research Environment. In our new whitepaper we highlight how BioMedIT balances data access and security, offering insights into collaboration, federation, and trust-building for future-ready research. For groundbreaking health research, researchers need a Trusted Research Environment (TRE). It enables them to work with sensitive personal data while …
Why Switzerland needs a Swiss Trusted Research Environment Read More »
In a two day workshop with experts from the Charité, Berlin, and our FAIR data team we explored possibilities to align SPHN concepts with the FHIR standard. SPHN just started a new collaboration with our colleagues from the Charité hospital in Berlin, SPHN aims to align SPHN and FHIR, exploring how we can develop SPHN-specific …
The SPHN Semantic Interoperability Framework’s 2025.1 release brings targeted improvements, enhancing the current schema and offering broader, more detailed representation of genomic variants. The SPHN Semantic Interoperability Framework provides a common language, guidelines, and tools necessary to gather health data for research in a FAIR manner. This means data is Findable, Accessible, Interoperable, and Reusable. …
SPHN releases the newest version of the SPHN Semantic Interoperability Framework Read More »
SPHN has updated its legal agreement template. This version builds on experiences from multi-site project negotiations. It addresses key legal requirements, ensuring secure and transparent data sharing between contracting parties. The updated legal agreement template for data sharing and usage provides a comprehensive framework for the obligations of the participating parties. It consists of a …
SPHN updates legal template for responsible data sharing Read More »
Navigating health care research with sensitive data can be complex, but SPHN is here to help. The SPHN Factsheet 2024 highlights the network’s most important tools and services both for researchers and hospitals. At SPHN, researchers find the support needed to realise multi-centered research projects with hospital data. The factsheet 2024 shows how to set …
SPHN Factsheet 2024: Improving patient care with SPHN Read More »
The Data for Health symposium marked how far Switzerland has come over the last eight years in terms of personalized health. The slides of the event are now available for download. Photos by Kuno Schläfli Presentations 1. Welcome and Opening – Prof. Urs Frey, Chair SPHN National Steering Board; Prof. Christian Wolfrum, Chair PHRT Strategic …
Presentations of the Data for Health event are now available Read More »
Prof. Matthias Baumgartner will take over as Chair of the Swiss Personalized Health Network (SPHN) in 2025, succeeding Urs Frey, who has led the network since 2019. Baumgartner will accompany SPHN and its Data Coordination Center (DCC) into the maintenance phase. Matthias Baumgartner is Full Professor of Metabolic Diseases at the University of Zurich, Director …
A new president for the Swiss Personalized Health Network Read More »
At the Data for Health symposium, SPHN and PHRT celebrated the achievements from the past eight years. With over 450 participants, the symposium was a great success. Data helps improve patient treatment. The SPHN and PHRT initiatives have laid the groundwork for hospitals to share health data at scale for multi-center studies. At the Data …
Data for Health: Strengthening the community of data-driven health in Switzerland Read More »
SPHN is introducing the SPHN Data Exploration and Analysis System (DEAS). It offers researchers improved tools for conducting data queries and feasibility studies. This platform will replace the current Federated Query System, which will be discontinued by December 2024. SPHN is expanding its data query capabilities with the new Data Exploration and Analysis System (DEAS). …
Improved search and analysis options: SPHN launches a new cross-hospital data query tool Read More »