Harmonising the collection of health-related data and biospecimens in paediatric hospitals throughout Switzerland

Presenter: Prof. Claudia Kühni
Dr. med., Institute of Social and Preventive Medicine, University of Berne

Medical research in children is complicated because of data fragmentation, heterogeneity and scarcity. Children cannot be considered “small adults” when it comes to treatment. It is therefore critically important to improve the quality of medical data routinely collected in children’s hospitals to tailor high-quality paediatric research. This project is a first step towards the overall goal to develop an infrastructure capable to harness high-quality medical data, for every child in Switzerland. It aims to harmonize medical data collected in all Swiss children’s hospitals and to assess the feasibility of collecting additional patient-reported data. Read the abstract...

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